Hello, welcome back to my blog this week. I hope you’ve all had a great week and my week can help inspire you to do the things you love. If you’re new to my blog, a little bit of background information will be needed. I’m called Matthew, a 17 year old, and I am a runner. This blog is Documenting my journey through Cancer (this is my second time). So let’s get started.
On Monday it was a slow starting day but fast forward to around lunch time it really picked up. A zoom call had been arranged and a picnic sorted, replacing the reality of a picnic which we’d planned, for a meeting with my grandparents, auntie, uncle and cousins who I haven’t seen in a year. I loved seeing them, I really did. It’s just a shame we’re on a regional lock down due to the pandemic. So, lunch went down a lot better than usual and then I went out with my twin brother and a friend who we haven’t seen since high school. It was great to see her again and I really enjoyed talking to her for around 4 hours. Overall, Monday was a great day.
Tuesday, it may seem like you’ve got Da Ja Vu with what I’m going to say, I met up with the same girl as last week. Another 5 and a bit hours just talking as we walked around a trail. I really love her company and enjoy our time together because, as I’m told, and I believe she really cares. After the walk, I was Sweating really badly and I stunk, my family picked me up and we went out for tea. An all you can eat Japanese, really good and a very grand restaurant. I loved it.
Moving onto Wednesday and Thursday, they seem to have morphed. Obviously not very productive then but these led to Friday which is the important part.
On Friday I had an appointment with my consultant. I’m very happy with this appointment, it may not look great but this is a better appointment than I have been having in the past few months. So, what did he say? Yes, it’s still on my brainstem; but he wants to put me on a study where they analyse the molecules of my tumour and blood to try and match me up with a unique treatment for my disease. I was happy with that. And my neurological test was really good, the best I’ve done in a long long time. Chemotherapy was also discussed, as no one yet knows what the tumour is he is waiting for the last test to come back but may start me on tablet chemotherapy anyway even if nothing is found due to the nature of the tumour. So that was Friday, mainly positive.
Onto the weekend, Saturday was a quiet day and I’m actually starting to do some college work again. I’m really pleased that I am and today I’ve been Blackberry picking and we had Blackberry crumble. Of course, I loved it. Not just the food but the family time.
This has been my week and next week I’m starting radiotherapy on Monday so be prepared to see updates about that. I’m not scared as I know this can help treat my disease and stop the growth of the mutant in my head. Also, Side note for anyone going through something like this, it’s fine to feel low and get annoyed over people constantly worrying about you and telling you to rest. I know this gets us down as it’s a reminder of our condition and we wanted to be treated normally but we must accept people will worry and try and tell them to stop when it’s too much.
Thank you so much for reading this week’s blog post and I hope you have a good week. I’ll keep you updated about my treatment and please feel free to subscribe to my blog.